Posts Tagged ‘disorder’
Australian man with an unbearable genetic disease, Erythropoietic Protoporphyria (EPP)
http://www.clinuvel.com/skin-conditions/rare-skin-conditions/erythropoietic-protoporphyria
Adrian was diagnosed with the genetic disease Erythropoietic Protoporphyria (EPP) when he was 5. Exposure to light causes him excruciating pain. He has absolute light intolerance.
EPP is characterised by the accumulation of toxic compounds in the body of patients. Exposing an EPP patients skin to light, particularly blue light, causes excruciating pain: intense burning, stinging heat. Adrian describes EPP as similar to having badly sunburnt skin scrubbed with a wire brush. Swelling and blistering can also form after extended time exposure. Even artificial lights, such as those in supermarkets and laptop screens can cause acute pain.
EPP is a lifelong disorder presenting in early childhood. The onset of the disease is traumatic for both children and parents.
Sun avoidance is the mainstay of treatment for EPP: patients are often forced to remain indoors, severely affecting their quality of life. Eventually a nocturnal existence is the only way of life for many porphyria patients.
Currently, there is no proven effective treatment or prevention method for EPP.
View this video with German subtitles:
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For more information on EPP visit:
http://www.clinuvel.com/
http://www.scenesse.com/
Duration : 0:7:53
Living With Parkinson’s Disease
View more videos at: http://www.healthsciencechannel.com
HSC 037 – More than 1.5 million Americans currently have Parkinson Disease. It’s a condition that affects men and women from all areas of the world and walks of life equally. The outward effects are quite recognizable, with patients experiencing shaking limbs, slow movement and muscle stiffness. But the impact on quality of life can be equally challenging for patients, family and caregivers. This program will help provide a better understanding of the disease, diagnosis and treatments, while offering a look at the future of preventing and managing Parkinson’s disease.
Duration : 0:4:10
Sleep Apnea by Sound Sleep Health
www.SoundSleepHealth.com
Obstructive Sleep Apnea, or OSA, degrades the quality of sleep and can adversely affect the cardiovascular system. CPAP, or continuous positive airway pressure, is the best treatment. Identifying and treating sleep apnea may improve your quality of life. Brought to you by Sound Sleep Health.
Duration : 0:1:57
Learn More About Panic Attack Relief
http://www.saygoodbyetopanicattacks.com
Panic attacks can become a bothersome experience but panic episodes have been proven to be harmless. A panic episode may usually last in a few minutes and the effects may immediately subside. Learning some panic attacks relief can significantly lessen or prevent an episode from happening. A lot of ways are currently available that may aid in panic attack relief, finding the one that will suit you the most is just a matter of preference.
Doing some breathing exercises and practicing breathing techniques, can be an effective way to deal with panic attacks. Breathing exercises help in lessening panic attack symptoms such as muscle tension and chest pains. It can also prevent hyperventilation and dizziness from happening. Breathing properly can also help in making a person feel more relaxed and calm.
Herbal medications are currently available in the market; it can also provide panic attack relief by natural means. This is often used by individuals who undergo treatment for longer periods of time. Chamomile, green tea extracts and lavender when used as tea can also provide calming and relaxing effects and herbal medicine have been proven to have no side effects.
Performing meditation can also be a good alternative for easing symptoms of impending panic episodes. It has been proven that meditation can in ridding the body of tension and stress; it can also calm the mental state of our minds. Learning meditation can take a longer time to perfect however, once perfected it can be a beneficial means of preventing panic attacks.
Consulting a therapist or counselor can also be a form of treatment for panic attacks. Trying out new methods of therapy, with the supervision of a psychotherapist can greatly reduce panic attacks form occurring or prevent it from happening again.
Cognitive behavioral therapy is one method of preventing panic attacks, the purpose of this method is for the therapist to seek the causes of the panic episode and try to substitute it with positive thinking. This method focuses on the thinking patterns of a person and looks at the causes of panic attacks.
Interoceptive exposure therapy is another method of psychotherapy. This therapy subjects individuals to experience panic attacks with the supervision of a therapist, this aims to point that panic attacks are not harmful and does not cause harm to others. This method can also provide a positive manner of thinking for patients, helping them avoid panic attacks.
Taking medications can be an easy way of preventing panic attacks from happening. The common prescriptions for panic attacks are anti-depressants and anxiety pills. Use of medicines however, should be limited since excessive use of these drugs can lead to an addiction.
Medications and different methods of therapy can be a good combination in getting rid of panic attacks permanently. Research data shows that an effective and fast way of recovery is through the use of a combination of panic attack relief methods, than using just one method.
It is best to consult a doctor about panic attacks, proper diagnosis is important so that the necessary measures could be implemented. These methods can help in eliminating the symptoms of a panic attack, and it may get rid of panic disorder permanently.
For more information please visit: http://www.panicattacksdisorder.org/lin … hod-review
Duration : 0:4:14
Clinuvel, improving quality of life. Photodynamic Therapy (PDT)
SCENESSE® (afamelanotide) holds promise as a preventative pharmaceutical treatment, improving quality of life for patients with advanced stage bile duct cancer, who are eligible to undergo Photodynamic Therapy (PDT).
Clinuvel is committed to caring for patients who do not receive medical attention for light and UV related diseases. We believe strongly in prevention and we are aware of the importance of quality of life.
In 1993 the US NCI provided the seed funding to research a molecule for the prevention of skin cancer. Clinuvel spent 9 years to commercially develop this molecule into a viable preventative product to treat severe light and UV related skin disorders.
Through study of preventative applications we have uncovered afamelanotide’s potential as a treatment for cancer patients undergoing PDT.
In PDT, similar phototoxic reactions are observed in patients, as the skin reactions seen in Erythropoietic Protoporphyria (EPP). EPP is one of the foci of Clinuvel Pharmaceuticals.
For more information on SCENESSE® (afamelanotide) visit:
http://www.clinuvel.com/
http://www.scenesse.com/
Duration : 0:2:47
