Hassel Free Living

Posts Tagged ‘Australia’

A healthy mind, body and spirit was the focus of a recent Live Longer! Healthy Community Day hosted by the Coomealla Health Aboriginal Corporation. The team shared its passion for healthy living with the local Dareton community.

Duration : 0:2:46

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http://www.coconutmagic.com Jenni talks about her products and some of the unusual benefits of coconut oil for inporoving health and vitality.

Duration : 0:7:9

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http://www.clinuvel.com/skin-conditions/rare-skin-conditions/erythropoietic-protoporphyria

Adrian was diagnosed with the genetic disease Erythropoietic Protoporphyria (EPP) when he was 5. Exposure to light causes him excruciating pain. He has absolute light intolerance.

EPP is characterised by the accumulation of toxic compounds in the body of patients. Exposing an EPP patients skin to light, particularly blue light, causes excruciating pain: intense burning, stinging heat. Adrian describes EPP as similar to having badly sunburnt skin scrubbed with a wire brush. Swelling and blistering can also form after extended time exposure. Even artificial lights, such as those in supermarkets and laptop screens can cause acute pain.

EPP is a lifelong disorder presenting in early childhood. The onset of the disease is traumatic for both children and parents.

Sun avoidance is the mainstay of treatment for EPP: patients are often forced to remain indoors, severely affecting their quality of life. Eventually a nocturnal existence is the only way of life for many porphyria patients.

Currently, there is no proven effective treatment or prevention method for EPP.

View this video with German subtitles:

View this video with Hebrew subtitles:

For more information on EPP visit:

http://www.clinuvel.com/

http://www.scenesse.com/

Duration : 0:7:53

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SCENESSE® (afamelanotide) holds promise as a preventative pharmaceutical treatment, improving quality of life for patients with advanced stage bile duct cancer, who are eligible to undergo Photodynamic Therapy (PDT).

Clinuvel is committed to caring for patients who do not receive medical attention for light and UV related diseases. We believe strongly in prevention and we are aware of the importance of quality of life.

In 1993 the US NCI provided the seed funding to research a molecule for the prevention of skin cancer. Clinuvel spent 9 years to commercially develop this molecule into a viable preventative product to treat severe light and UV related skin disorders.

Through study of preventative applications we have uncovered afamelanotide’s potential as a treatment for cancer patients undergoing PDT.

In PDT, similar phototoxic reactions are observed in patients, as the skin reactions seen in Erythropoietic Protoporphyria (EPP). EPP is one of the foci of Clinuvel Pharmaceuticals.

For more information on SCENESSE® (afamelanotide) visit:

http://www.clinuvel.com/

http://www.scenesse.com/

Duration : 0:2:47

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Master trainer, Hermann Muller, speaks about the relationship between the mind, body and spirit.

Duration : 0:5:6

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